Another Life Sentence Part 3

Jun 05

Since I have recently been diagnosed with Crohn’s disease, I began taking a new medication. I started on Budesonide in December. It was a few days before Christmas and my husband was going to pick up my prescription for me. I looked online to see how much it was and found out it was going to be $226.

I told him not to get it that I could just wait. I was very upset that it cost so much and I was feeling bad too. He said that he was going to go ahead and pick it up and that we would just have to cut back on Christmas for our daughter. That, of course, upset me even more. I begged him not to get it, but he did anyway.

I started taking it and after a few weeks, I started feeling a little more“human” again. I wasn’t nauseated all the time and not having as much diarrhea. Then in January when it was time for a refill my regular pharmacy told me that it would be $1,100.00 this month. I had completely forgotten about the new year…meaning a new deductible

🙁

I called around to find the cheapest, local cash price. She told me it would $900 if I paid cash or it would be $1,100 with my insurance. I said are you sure that you filed my insurance? Would you please ask someone else there to double check. She said she would and called me back and told me that the prices were correct. Yes, that’s correct. It was cheaper without my insurance.

I was about to learn a lesson in Insurance 101. I called my insurance company to make sure that she had indeed filed the claim. He said yes and that the $1,100 was the “negotiated price” from my insurance company. In other words, I felt like I was being ripped off, to say the least.

I called the manufacturer since I have heard several commercials that say the manufacturer may be able to help. This is an example: “If you can’t afford your medicine, AstraZeneca may be able to help.” When I called the manufacturer they said: “We can’t help you with that medication.”

In desperation, I called my doctor’s office and the most helpful, young lady answered the phone. When I explained my situation she stated that one of her co-workers has Crohn’s and that she uses canadadrugs.com. I was not convinced. I was concerned about ordering my medication online.

Then I talked to the lady that has Crohn’s and she said that she always uses them and so do some of their patients. She said that they even offer more of a discount if you order more than a month at a time. I was now persuaded to do my “drug deal” online.

I called and asked about the pricing and was told that it would be $89 plus $10 shipping!! Thank the Lord! That price is a lot more reasonable! There was one problem it would take three weeks for the shipping. I also had to fill out some paperwork, send a voided check, and get another prescription from the doctor.

It was February 1st when I finally placed the order. It was near the end of February before I started taking the medication again. I was starting again and it took a few weeks for me to notice a change. However, this time the improvement was not as apparent as it was the first time.

I feel like I am still struggling a lot. I have days when my stomach cramps all day. I have had nights when I have to run to the bathroom several times during the night. I have days that I am in a Crohn’s flare and push myself and still go to work only to pay for it for the next several days.

After a recent visit to my gastroenterologist, I am considering taking Humira injections. I told him I would like to give what I am taking now at least another month. There are a lot possible side effects from Humira. My doctor said that I needed to look at the quality of life versus side effects. I agree and I have come to to the same conclusion with other medications that I have tried.

Once such medication was Elmiron that I was taking for my bladder disease (Interstitial Cystitis.) I took it for several months, but I was nauseated, couldn’t sleep or eat most all of the time. I felt like I was losing my mind.  I finally decided it was not worth it for me and I quit taking it. Even though it is the only FDA medication approved for treating my bladder disease.

I suffer from symptoms of my bladder disease every day but it is not the issue that is screaming the loudest in my body now. For months on end I will suffer from flares (increased symptoms) of my bladder issues and then I may go into remission for a few months.

As I continue along this journey I never know when I receive “Another Life Sentence.”  But one thing I can always count on is that when I am facing challenging times it is an opportunity for me to trust the Lord.  If I look at my path and try to handle it myself, I will certainly face anxiety and depression.  The best way I can face each new day is to stay in close communication with the Lord.  My thoughts and spoken words should reflect my trust in the Lord.  I know He can keep me in perfect peace.

 

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